Origin Story
Four weeks ago, the fourteen-year-old nephew of this Lead Innovation Specialist at a university hospital was diagnosed with inoperable brain cancer.
“I’m getting to see the other side of medicine. Normally, I work in innovation, commercialization, and idea development, not in the clinical end. I wonder if these medical professionals, in caring for people who face such insurmountable odds, walk around all the time carrying this weight I’m hauling now.”
To help her family bear the devastating diagnosis, she leans on her strengths, scheduling doctor’s visits and keeping a calendar for her sister and brother-in-law. Facing such heartache, however, the mind burrows and spirals in its own directions. She finds herself bargaining sometimes, philosophizing others. She can feel guilty one second, and the next, utterly helpless: “It’s like there’s a rabbit in my head,” she explained, “and I’m just trying to get the rabbit to hop a little less.”
Moriah Cohen, Listener Poet
CLP Practicum Poem Cohort 5
Winter 2023
The Mind is a Rabbit Making Warrens of its Grief
By Moriah Cohen, Listener Poet
you schedule bloodwork
follow-ups
calendar appointments on
post-it notes emails
to your sister
like you are brushing
crumbs from the counter
with one hand
while the other
tallies
statistics in this masterclass
on cancer–how
often patients die
within twelve months
the likelihood of its being
inoperable
the way it is
in your nephew’s
thalamus the precision
of radiation
the size of the tumor
how does one live still
with this knowledge
and not say
the heart with its
many burrows
and chambers
is unlivable
you watch your nephew
pull out enough
hair to make
a nest
mourn the arrow knocked
off course
say you do but do not
pray there is no
quota on catastrophe
no lamb’s foot
nor talisman no insurance
to warden the kennel
when you cry you steal
your sister’s suffering
have no right
to pivotal
transformation
another baby
in a house you yanked
out of a hat
there is a rabbit
in your head
its foot on a brick scale
there is no through
no comfort to be born
is to be blind
and hairless
and prey
to offer your body
to the fire
and pretend
you won’t burn
“Everything that could have gone wrong went wrong,” she said. She held her baby in her arms as she shared their birth story. Her daughter spent three weeks in the NICU, and she was there every day.
“I was at a birth recently and thought: This is why they are so afraid of us. They can’t control this” She sat on her couch with a mug of coffee. She is a queer, femme, mother of two who has worked in reproductive health for over two decades.
Interspersed with the joys and worries of being a gramma, she recounted her own grandparents – challenges and opportunities of caring for them, grief of losing them, gratitude for being loved by them, and the everyday experiences of now living in their home.
What is pain without a diagnosis? This is what occupied this patient before she even received her breast cancer diagnosis about a year ago.
She told me that she picked her battles more and was trying to be less of a people pleaser.
He ended up talking about his son, who is now his daughter. Another part of his experience of continual growth and soul-opening.
Her values and perspective on life had changed as she considered ways to spend more time with her husband.
“When I see an old dude who’s optimistic, living his life, I always stop to talk to him to try to find out what he has done.”
This nurse was considering leaving a position where she spent many years due to issues she experienced and witnessed at her hospital.
Many of the people he worked with had to develop a new identity in the context of their caregiving responsibilities. “It’s as if they need to become a new variant of themselves.”
“We’re taught to enter a room with a specific goal... with assumptions... with a hypothesis about what may be going on with the patient.”
She believes that most of those who have connected with ACS began with a personal connection, but then, according to her, “you evolve, and you shift.”
With her background in counseling and psychology, she works to bring people together and support patients.
Although at times she becomes discouraged about the inequalities in the world, she is determined to do her part by making sure everyone has access to quality healthcare.
This person radiated gratitude and hope. She shared that she discovered she was expecting a son just before receiving a lung cancer diagnosis at the age of 31.
She had an epiphany as a child — that love could heal the world. Now, as a seasoned physician, there’s still a part of her that believes in the power of love, but not with the same idealism she once held.
He talked about recently speaking with a patient who experiences migraines: she is seeking the truth, he is seeking the truth to find a way to work with her, wanting to give more than a diagnosis and prognosis.
To her, the surgical world has felt like “a wheel that keeps spinning,” a seemingly endless pursuit towards an undefinable goal.
While she kept an open mind throughout medical school, the field of OB/GYN ticked off all the boxes for her.
“The historic traumas of African-American women — all African-Americans — lead us to not be the first people at the doctors, nor the first to get surgery.”
“Sometimes I feel so helpless,” said this resident, reflecting on all of the challenges faced by the young patients and their families whom she served. Over the last several days, she has become increasingly overwhelmed by events in the news and has questioned her ability to make a difference in the world.
“It’s hard to watch the decline and sometimes hard to visit but it weighs on me not to,” she said. Her father had always been an elaborate storyteller and an alive, vibrant man with a big voice.
The Good Listening Project was honored to once again take part in the annual KNN conference in Minneapolis this year. Jenny closed the session by writing this harvest poem that captured the voices and sentiments shared.
After a history of crippling endometriosis, this woman had an arduous, ongoing struggle with her healthcare community for the right to have a hysterectomy. She was finally granted approval at the age of 29. “It had been like pulling teeth, but finally I felt free,” she told me.
Her childhood was infused with Hawaiian-Polynesian music and dance, taught to her father by his mother. Today, her life’s work is to connect the unbelievable discoveries of molecularly focused pre-clinical research directly to the patient experience of treatment.
She is a single mother born to a single mother and had to grow up fast. She is juggling a sticky work situation, her own anxiety and depression, and being away from home and her kids.
I was invited to create a group poem for forty participants at the Arts in Healing luncheon, hosted by the Inova Health Foundation in partnership with the board.
What does it mean for people living with Sickle Cell Disease to be seen, heard, and understood? For this person, it meant finding – and using – her voice to advocate for herself and for others.
“I’ve experienced a lot of big losses,” she said. “I want to be a beacon of hope and light, keeping the flame lit for cancer prevention.”
