Origin Story
“What I’ve been thinking a lot about lately is hard to put into words,” said this palliative care physician.
At first she said this had to do with boundaries between herself as a physician and the patients and families she cared for – but she noted that this was perhaps not a precise enough word. She said that during training, physicians learn to have a separation between themselves and their patients. “We’re taught to enter a room with a specific goal... with assumptions... with a hypothesis about what may be going on with the patient.” The subsequent interaction with the patient, then, is meant to confirm or reject the initial assumptions and hypotheses. She explained that often patients and family members will want to tell stories that are meaningful to them. In the way that physicians are traditionally taught, much of what is told in these stories is not thought to be relevant to their care. In palliative care, however, the stories can be crucially important to the delivery of high-quality care.
She shared that in her work she sometimes experienced a “blurring of the lines” as well as experiencing the “full bouquet of emotions” from patients and families. Reflecting on this experience, she said she saw it as a gift. “I get to learn about myself and experience the sharing of humanity.” This was a gift she was focused on helping other healthcare providers learn to appreciate and make appropriate use of.
Yvette Perry, Listener Poet
Children’s Hospital Los Angeles
July 2022
Presented at the National Council on Family Relations Annual Conference 2025
In the River You May Find Yourself
By Yvette Perry, Listener Poet
Within the caring-for
There is a gap
Emotions of every kind
Live together there
Grief and joy
Anguish and delight
And love–always love
You may plant yourself
Far from that deep gorge
Stable roots secured,
Prepared to proclaim from there
Your expert knowledge
But in that gap
There is a story
Even at life’s closing, a tale of
I remember that time when…
Revealing through its telling
The meaning of
Mother
Father
Grandparent
You may see yourself only
As ears for this story,
Tuned to hear
Important cues for your
Decisions and diagnoses
The story, though,
Is a river
Flowing for eons and eons,
It empties to a
Sea of memories of the
Whole of humanity
You may find yourself
Unmoored from your soil
Suddenly on the shore, then
Slipping into water and
Carried on currents of
Emotions of others
The river
Defines the caring-for
An often-improvised balance of
Listening and feeling, of
Being-present-in and
Bearing-witness-to
In the river
(In the caring)
You may find yourself
Sometimes swimming
Sometimes rowing
Sometimes drifting
But human–always human
“I was at a birth recently and thought: This is why they are so afraid of us. They can’t control this” She sat on her couch with a mug of coffee. She is a queer, femme, mother of two who has worked in reproductive health for over two decades.
Interspersed with the joys and worries of being a gramma, she recounted her own grandparents – challenges and opportunities of caring for them, grief of losing them, gratitude for being loved by them, and the everyday experiences of now living in their home.
What is pain without a diagnosis? This is what occupied this patient before she even received her breast cancer diagnosis about a year ago.
She told me that she picked her battles more and was trying to be less of a people pleaser.
He ended up talking about his son, who is now his daughter. Another part of his experience of continual growth and soul-opening.
Her values and perspective on life had changed as she considered ways to spend more time with her husband.
“When I see an old dude who’s optimistic, living his life, I always stop to talk to him to try to find out what he has done.”
This nurse was considering leaving a position where she spent many years due to issues she experienced and witnessed at her hospital.
Many of the people he worked with had to develop a new identity in the context of their caregiving responsibilities. “It’s as if they need to become a new variant of themselves.”
“We’re taught to enter a room with a specific goal... with assumptions... with a hypothesis about what may be going on with the patient.”
She believes that most of those who have connected with ACS began with a personal connection, but then, according to her, “you evolve, and you shift.”
With her background in counseling and psychology, she works to bring people together and support patients.
Although at times she becomes discouraged about the inequalities in the world, she is determined to do her part by making sure everyone has access to quality healthcare.
This person radiated gratitude and hope. She shared that she discovered she was expecting a son just before receiving a lung cancer diagnosis at the age of 31.
She had an epiphany as a child — that love could heal the world. Now, as a seasoned physician, there’s still a part of her that believes in the power of love, but not with the same idealism she once held.
He talked about recently speaking with a patient who experiences migraines: she is seeking the truth, he is seeking the truth to find a way to work with her, wanting to give more than a diagnosis and prognosis.
To her, the surgical world has felt like “a wheel that keeps spinning,” a seemingly endless pursuit towards an undefinable goal.
While she kept an open mind throughout medical school, the field of OB/GYN ticked off all the boxes for her.
“The historic traumas of African-American women — all African-Americans — lead us to not be the first people at the doctors, nor the first to get surgery.”
“Sometimes I feel so helpless,” said this resident, reflecting on all of the challenges faced by the young patients and their families whom she served. Over the last several days, she has become increasingly overwhelmed by events in the news and has questioned her ability to make a difference in the world.
“It’s hard to watch the decline and sometimes hard to visit but it weighs on me not to,” she said. Her father had always been an elaborate storyteller and an alive, vibrant man with a big voice.
The Good Listening Project was honored to once again take part in the annual KNN conference in Minneapolis this year. Jenny closed the session by writing this harvest poem that captured the voices and sentiments shared.
After a history of crippling endometriosis, this woman had an arduous, ongoing struggle with her healthcare community for the right to have a hysterectomy. She was finally granted approval at the age of 29. “It had been like pulling teeth, but finally I felt free,” she told me.
Her childhood was infused with Hawaiian-Polynesian music and dance, taught to her father by his mother. Today, her life’s work is to connect the unbelievable discoveries of molecularly focused pre-clinical research directly to the patient experience of treatment.
She is a single mother born to a single mother and had to grow up fast. She is juggling a sticky work situation, her own anxiety and depression, and being away from home and her kids.
I was invited to create a group poem for forty participants at the Arts in Healing luncheon, hosted by the Inova Health Foundation in partnership with the board.
What does it mean for people living with Sickle Cell Disease to be seen, heard, and understood? For this person, it meant finding – and using – her voice to advocate for herself and for others.
“I’ve experienced a lot of big losses,” she said. “I want to be a beacon of hope and light, keeping the flame lit for cancer prevention.”
Professionally, for this person, Henrietta Lacks’ story represents the need to critically examine our research infrastructure.
