Origin Story
“Everything that could have gone wrong went wrong,” she said. She held her baby in her arms as she shared their birth story. Her daughter spent three weeks in the NICU, and she was there every day.
As a first-time mom, she loved being pregnant. But at 35 weeks she woke up with her heart racing and a feeling of impending doom. Her blood pressure was dangerously high, and she didn’t leave the hospital again until her daughter was born days later.
She labored for two days, experienced flu-like side effects from magnesium, was unable to walk after an epidural, and wasn’t prepared for the c-section or the hemorrhage that followed. Through it all, her husband was by her side talking her through everything. She described a beautiful moment when the nurses first brought her baby’s face to hers – and she said she’d do it all over again just to have her here.
For three weeks afterwards, she and her husband were at the hospital every day. “Every day was the unknown,” she said. “We became so reliant on the monitors; the nurses call it ‘monitor fever’ – we could hear it in our sleep. It was such an adjustment when we brought her home. We had to learn to trust that she would be fine without them.”
She told me how grateful she was for her support system. “I’d tell any new parent going through this: lean on your village. Ask for help. You can’t do this alone,” she said. “Having support made all the difference for us when we were exhausted and overwhelmed. I don’t know what kind of emotional shape we’d be in otherwise.”
“My greatest hope for her is that she grows up feeling strong and confident,” she said. “She won’t remember this time – just a tiny baby in the face of adversity – but she powered through.”
Ravenna Raven, Listener Poet
Made possible via a partnership between The Good Listening Project & Blue Cross Blue Shield of Illinois
Each Spring Reminding Me
By Ravenna Raven, Listener Poet
When still the spring
is so tender and new,
the tiny early bundles of petals
appear as miracles.
This year
was no different.
Except
you are here.
You are here
as I tell our story,
as I share my greatest
hopes for you,
as I see how much
you’ve been through
and how strong
it has made you.
There isn’t a world where
I wouldn’t choose you
again and again –
each spring reminding me
of our first moment together,
how you changed our lives –
your face next to mine.
“Everything that could have gone wrong went wrong,” she said. She held her baby in her arms as she shared their birth story. Her daughter spent three weeks in the NICU, and she was there every day.
“I was at a birth recently and thought: This is why they are so afraid of us. They can’t control this” She sat on her couch with a mug of coffee. She is a queer, femme, mother of two who has worked in reproductive health for over two decades.
Interspersed with the joys and worries of being a gramma, she recounted her own grandparents – challenges and opportunities of caring for them, grief of losing them, gratitude for being loved by them, and the everyday experiences of now living in their home.
What is pain without a diagnosis? This is what occupied this patient before she even received her breast cancer diagnosis about a year ago.
She told me that she picked her battles more and was trying to be less of a people pleaser.
He ended up talking about his son, who is now his daughter. Another part of his experience of continual growth and soul-opening.
Her values and perspective on life had changed as she considered ways to spend more time with her husband.
“When I see an old dude who’s optimistic, living his life, I always stop to talk to him to try to find out what he has done.”
This nurse was considering leaving a position where she spent many years due to issues she experienced and witnessed at her hospital.
Many of the people he worked with had to develop a new identity in the context of their caregiving responsibilities. “It’s as if they need to become a new variant of themselves.”
“We’re taught to enter a room with a specific goal... with assumptions... with a hypothesis about what may be going on with the patient.”
She believes that most of those who have connected with ACS began with a personal connection, but then, according to her, “you evolve, and you shift.”
With her background in counseling and psychology, she works to bring people together and support patients.
Although at times she becomes discouraged about the inequalities in the world, she is determined to do her part by making sure everyone has access to quality healthcare.
This person radiated gratitude and hope. She shared that she discovered she was expecting a son just before receiving a lung cancer diagnosis at the age of 31.
She had an epiphany as a child — that love could heal the world. Now, as a seasoned physician, there’s still a part of her that believes in the power of love, but not with the same idealism she once held.
He talked about recently speaking with a patient who experiences migraines: she is seeking the truth, he is seeking the truth to find a way to work with her, wanting to give more than a diagnosis and prognosis.
To her, the surgical world has felt like “a wheel that keeps spinning,” a seemingly endless pursuit towards an undefinable goal.
While she kept an open mind throughout medical school, the field of OB/GYN ticked off all the boxes for her.
“The historic traumas of African-American women — all African-Americans — lead us to not be the first people at the doctors, nor the first to get surgery.”
“Sometimes I feel so helpless,” said this resident, reflecting on all of the challenges faced by the young patients and their families whom she served. Over the last several days, she has become increasingly overwhelmed by events in the news and has questioned her ability to make a difference in the world.
“It’s hard to watch the decline and sometimes hard to visit but it weighs on me not to,” she said. Her father had always been an elaborate storyteller and an alive, vibrant man with a big voice.
The Good Listening Project was honored to once again take part in the annual KNN conference in Minneapolis this year. Jenny closed the session by writing this harvest poem that captured the voices and sentiments shared.
After a history of crippling endometriosis, this woman had an arduous, ongoing struggle with her healthcare community for the right to have a hysterectomy. She was finally granted approval at the age of 29. “It had been like pulling teeth, but finally I felt free,” she told me.
Her childhood was infused with Hawaiian-Polynesian music and dance, taught to her father by his mother. Today, her life’s work is to connect the unbelievable discoveries of molecularly focused pre-clinical research directly to the patient experience of treatment.
She is a single mother born to a single mother and had to grow up fast. She is juggling a sticky work situation, her own anxiety and depression, and being away from home and her kids.
I was invited to create a group poem for forty participants at the Arts in Healing luncheon, hosted by the Inova Health Foundation in partnership with the board.
What does it mean for people living with Sickle Cell Disease to be seen, heard, and understood? For this person, it meant finding – and using – her voice to advocate for herself and for others.
“I’ve experienced a lot of big losses,” she said. “I want to be a beacon of hope and light, keeping the flame lit for cancer prevention.”
