Origin Story
“It’s hard to watch the decline and sometimes hard to visit but it weighs on me not to,” she said. Her father had always been an elaborate storyteller and an alive, vibrant man with a big voice.
She described the move from the house he had known to her house and to a facility, all during Covid, and the guilt she had felt about not being able to keep him out of care when the dementia became too severe and his behavior too hard to handle. She was a schoolteacher and theatre director with a busy schedule but who always figured out a way to go sit with her dad and to be the primary person he could count on no matter what.
“I knew since I was a child that I wanted to do this for him if he needed. I feel blessed that I can.”
Nancy S. Scherlong, Listener Poet
Listener Poet Session
February 2025
Stories with My Father
By Nancy S. Scherlong, Listener Poet
He points to his head,
to the corduroy hat I gave him –
“I got this from a marine, nice guy.”
It hurts my heart.
I don’t correct him.
Most of the time they are dark;
a gunman in the facility,
and sometimes true –
our brother dying again (and again),
or the baby that lived only a few hours.
We are sucked quickly
into the loud television, lost
in the days’ bad news.
We float and bob
in the rushing
river of memory.
“That’s mom,” I tell him,
when he asks the name
of the woman in the picture.
How does the mind sift?
What gets through?
And don’t we all tell ourselves stories –
How different my own ending will be,
How things won’t change without my knowing,
How we all think we have time.
“It’s hard to watch the decline and sometimes hard to visit but it weighs on me not to,” she said. Her father had always been an elaborate storyteller and an alive, vibrant man with a big voice.
The Good Listening Project was honored to once again take part in the annual KNN conference in Minneapolis this year. Jenny closed the session by writing this harvest poem that captured the voices and sentiments shared.
After a history of crippling endometriosis, this woman had an arduous, ongoing struggle with her healthcare community for the right to have a hysterectomy. She was finally granted approval at the age of 29. “It had been like pulling teeth, but finally I felt free,” she told me.
Her childhood was infused with Hawaiian-Polynesian music and dance, taught to her father by his mother. Today, this poemee is the Director of the PhD program in Biomedical and Translational Sciences. She has used HeLa cells for decades. Her life’s work is to connect the unbelievable discoveries of molecularly focused pre-clinical research directly to the patient experience of treatment.
She is a single mother born to a single mother and had to grow up fast. She is juggling a sticky work situation, her own anxiety and depression, and being away from home and her kids.
Instead of the usual Listener Poet format – listening to one person’s story and responding with a framing narrative and custom poem – I was invited to create a group poem for forty participants at the Arts in Healing luncheon, hosted by the Inova Health Foundation in partnership with the board.
What does it mean for people living with Sickle Cell Disease to be seen, heard, and understood? For this person, it meant finding – and using – her voice to advocate for herself and for others.
“I’ve experienced a lot of big losses,” she said, referencing the passing of a grandfather and two uncles who did not survive their cancer diagnoses. “There were others too.”
Professionally, Lacks’ story represents for her the need to critically examine our research infrastructure generally. “We need to pay more attention to the sustainability of research,” she explained. “Private companies benefit from publicly-funded research without a requirement to give back to ensure the viability of future research.”
“The fact of my life is a miracle,” she told me. Living with multiple chronic illnesses, this patient spoke to me of her journey with alopecia. Of how, in witnessing her body transformed by the condition, she continues to move at once through grief and reclamation.
“I can’t see a future outside of our relationship,” she tells me, “but I also can’t see a future outside of residency.”
“I always believe, no matter what the doctor says, that I will be cured,” she says as her sister sits next to her.
“I wonder if these medical professionals, in caring for people who face such insurmountable odds, walk around all the time carrying this weight I’m hauling now.”
He had been trying to cope with the grief ever since and was on a quest for soul-searching and meaning-making.
She spoke about the ways this traumatic event shaped who she is today: a person with an “unshakeable peace” born of deep faith,
She wanted to help people feel comfortable and transform the shame around colon issues. "I want to talk about things that matter, the things people don't want to discuss.
When we met, she was coming off a stretch of nine 14-hour shifts. She was tired but in good spirits.
She reflected on how her resilience was born from moments of shared mirth amid life's trying chapters.
“Life is complex and dirty, but digging in is important to me,” she said. “Maybe if more of us understood history, we could understand each other better.”
We are expected to research, contribute to scholarship, earn grants – all on our own time.
We are expected to research, contribute to scholarship, earn grants – all on our own time.
Every day, I try to see through the patient lens, and I ask: what can we do to change this broken system?
This past year, he was a right defensive tackle on his school football team, but for the past two and a half years, he’d been caring for his dad, who had cancer.
She was very proud of her daughter and has hopes for “a bright future that’s as pain free as possible”