Origin Story
This poemee wanted to leave a legacy of doing good in this world. Although at times she becomes discouraged about the inequalities in the world, she is determined to do her part by making sure everyone has access to quality healthcare.
Chidube Nkiruka, Listener Poet
Our Why: Stories from the American Cancer Society’s Patient Support Team
November 2024
Legacy of Hope
By Chidube Nkiruka, Listener Poet
I signed up for this
the goodness
of humanity
prompted me
but speaking candidly
some days, I doubt my sanity
rouse myself panicky
is it all vanity
when the shadows of
inequality and inequity
bother me and depress me
my flame flickering
no longer blazing
but amazing
the embers of hope
smoldering under ashes
then resilience, my oxygen
blows, I phoenix again
but I’m no
exception
we're all lit from birth
to do good before we extinguish
from earth
tho this world darkens
by dearth of compassion
my actions
strobe this globe
with my passion
health
sparked by a mission
greater than myself
ending cancer for every
color and shade
illuminating every place
shining in every way
seeing in everyone a star
meeting people face to face
joining their wavelength
understand what solutions exists,
trailblazing what doesn't
kindling relationships
whatever it takes
hopefully healing
our healthcare crisis
I choose
to provide light
in a time, in a space, where
light often seeks cover… gloom
but I refuse to allow
my hope to be smothered… doom
I'm not self-important
I just believe
every self is important… boom
I will glow,
leaving a legacy of kindness behind
my burning why
I will not apologize
He speaks with honesty, vulnerability, and raw emotion about where he has been, where he is, and where he wants to be. Our conversation is grounded in a "Journey Map" inspired by the lives of those with pregnancy-associated death in Maine.
She has worked in addiction medicine for 20 years. As we spoke, we reflected on a "Journey Map" inspired by the lives of those with pregnancy-associated death in Maine. The composite patient’s “journey” was created by the Maine Maternal, Fetal, and Infant Mortality Review Panel to humanize the study’s data.
“This is my life’s purpose,” she says. “This is where my heart comes alive, where I need to be.” She is a peer recovery partner to women with substance use disorder who are pregnant, parenting, and seeking custody.
As an investigations caseworker, he works closely with parents experiencing substance use. He finds meaning in supporting people who are struggling to transform their lives under incredibly challenging circumstances.
Some lessons arrive only after time has passed. As children, we move through life believing love will always be waiting.
This nursing student reflected on the next chapter of her life as she neared the completion of her education. When I asked if she had any time for herself currently, she said, "Absolutely not."
He was a third year Neurology Resident whose passion was palpable as he shared that he had only fallen more in love with medicine over the past three years. Decision-making was a difficult part of his role, often in the grey.
"How can I be so still and so exhausted at the same time? I am taking in and processing so much more information now," she said. "I feel like a spinning top, moving in every direction at the same time."
“Everything that could have gone wrong went wrong,” she said. She held her baby in her arms as she shared their birth story. Her daughter spent three weeks in the NICU, and she was there every day.
“I was at a birth recently and thought: This is why they are so afraid of us. They can’t control this” She sat on her couch with a mug of coffee. She is a queer, femme, mother of two who has worked in reproductive health for over two decades.
Interspersed with the joys and worries of being a gramma, she recounted her own grandparents – challenges and opportunities of caring for them, grief of losing them, gratitude for being loved by them, and the everyday experiences of now living in their home.
What is pain without a diagnosis? This is what occupied this patient before she even received her breast cancer diagnosis about a year ago.
She told me that she picked her battles more and was trying to be less of a people pleaser.
He ended up talking about his son, who is now his daughter. Another part of his experience of continual growth and soul-opening.
Her values and perspective on life had changed as she considered ways to spend more time with her husband.
“When I see an old dude who’s optimistic, living his life, I always stop to talk to him to try to find out what he has done.”
This nurse was considering leaving a position where she spent many years due to issues she experienced and witnessed at her hospital.
Many of the people he worked with had to develop a new identity in the context of their caregiving responsibilities. “It’s as if they need to become a new variant of themselves.”
“We’re taught to enter a room with a specific goal... with assumptions... with a hypothesis about what may be going on with the patient.”
She believes that most of those who have connected with ACS began with a personal connection, but then, according to her, “you evolve, and you shift.”
With her background in counseling and psychology, she works to bring people together and support patients.
Although at times she becomes discouraged about the inequalities in the world, she is determined to do her part by making sure everyone has access to quality healthcare.
This person radiated gratitude and hope. She shared that she discovered she was expecting a son just before receiving a lung cancer diagnosis at the age of 31.
She had an epiphany as a child — that love could heal the world. Now, as a seasoned physician, there’s still a part of her that believes in the power of love, but not with the same idealism she once held.
He talked about recently speaking with a patient who experiences migraines: she is seeking the truth, he is seeking the truth to find a way to work with her, wanting to give more than a diagnosis and prognosis.
To her, the surgical world has felt like “a wheel that keeps spinning,” a seemingly endless pursuit towards an undefinable goal.
While she kept an open mind throughout medical school, the field of OB/GYN ticked off all the boxes for her.
“The historic traumas of African-American women — all African-Americans — lead us to not be the first people at the doctors, nor the first to get surgery.”
“Sometimes I feel so helpless,” said this resident, reflecting on all of the challenges faced by the young patients and their families whom she served. Over the last several days, she has become increasingly overwhelmed by events in the news and has questioned her ability to make a difference in the world.
