He had been thinking a lot about race over the past several months.
He’s a White man with two children: a 20-year-old biological son who is White, and an 18-year-old adopted daughter who is Black.
“Until recently, it was easy in our family, with our one Black child, to believe she had the same status in society. What’s happened over the past six months has made me realize that isn’t true and there’s nothing I can do to change it. It’s incredibly painful. I have been considering getting a Black Lives Matter tattoo on my arm. I really want to have something about where I stand on my skin, like her...something I can’t take away. As a White person, I’m scared to identify myself with a movement. That’s also why I want to do it. I’m not a person who broadcasts my opinions, but this isn’t a political opinion. It’s who I am.”
“This has been weighing on my heart and mind so heavily. I’m also struggling at work because I don’t get a clear message we’re committed to anti-racism work. As much as I love my job, I can only work for the VA if we’re taking an active stance and doing our part," he said.
Listener Poet Jenny Hegland
Veterans' Affairs Center for Development & Civic Engagement
August 2020
Skin
It is heart-wrenching to realize
I cannot protect my Black child from hate
or the present-day harm of history.
It is gut-wrenching to feel
the racist attitudes surfacing in the culture,
and within myself.
I am wrestling with what to do.
The weight is unwieldy;
the fear generations deep.
I can go to marches,
put signs in the yard,
but it’s not enough.
I need to have some skin in the game,
like her,
something that can never be taken away--
not to showcase an opinion or a stance,
but to reveal who I am
as a father.
This person is a neurologist of Romanian descent, in practice in the U.S. for 19 years, who draws inspiration from writers in his heritage. In his writing and work, he seeks to create a safe harbor for humanness while navigating the labyrinths of medicine to reach the essence of the humanity of his patients – even if all they want is a diagnosis or cure.
This poemee wanted to share her experience as a surgical resident, offering insight into the traditions that define this unique culture: the relentless pressure to succeed, the deference to those in higher positions, and the often-cold interactions that accompany a field-wide drive for speed and efficiency.
This new physician was looking forward to starting her OB/GYN residency. Her original goal in undergraduate school was physician assistant studies. But a series of experiences led her to consider a different path: medical school.
“I was at a birth recently and thought: This is why they are so afraid of us. They can’t control this” She sat on her couch with a mug of coffee. She is a queer, femme, mother of two who has worked in reproductive health for over two decades, first in abortion care and now as a doula for all, including queer and non-binary families, through the pregnancy spectrum. She has personally experienced birth, miscarriage, hysterectomy and surgical menopause.
A teenage cancer survivor, this poemee shared how she learned from the younger children she witnessed undergoing the same treatment she was. “You just see a difference in the way a child approaches it,” she said. “They have the moment, they have the pain, they have the shot, and then they just go back to playing. I always took strength from the way little kids would handle it.”
Conversation with Kimako Desvignes DNP, RN, Associate Director of Oncology with almost 30 years of experience in medicine, was an emotional journey through a history of social injustice and racial discrimination—a reflection on ancestry at times through shared tears. Henrietta Lacks’ story had a powerful impact on us both.
“Sometimes I feel so helpless,” said this resident, reflecting on all of the challenges faced by the young patients and their families whom she served. Over the last several days, she has become increasingly overwhelmed by events in the news and has questioned her ability to make a difference in the world.
“It’s hard to watch the decline and sometimes hard to visit but it weighs on me not to,” she said. Her father had always been an elaborate storyteller and an alive, vibrant man with a big voice.
The Good Listening Project was honored to once again take part in the annual KNN conference in Minneapolis this year. Jenny closed the session by writing this harvest poem that captured the voices and sentiments shared.
After a history of crippling endometriosis, this woman had an arduous, ongoing struggle with her healthcare community for the right to have a hysterectomy. She was finally granted approval at the age of 29. “It had been like pulling teeth, but finally I felt free,” she told me.
Her childhood was infused with Hawaiian-Polynesian music and dance, taught to her father by his mother. Today, her life’s work is to connect the unbelievable discoveries of molecularly focused pre-clinical research directly to the patient experience of treatment.
She is a single mother born to a single mother and had to grow up fast. She is juggling a sticky work situation, her own anxiety and depression, and being away from home and her kids.
Instead of the usual Listener Poet format – listening to one person’s story and responding with a framing narrative and custom poem – I was invited to create a group poem for forty participants at the Arts in Healing luncheon, hosted by the Inova Health Foundation in partnership with the board.
What does it mean for people living with Sickle Cell Disease to be seen, heard, and understood? For this person, it meant finding – and using – her voice to advocate for herself and for others.
“I’ve experienced a lot of big losses,” she said. “I want to be a beacon of hope and light, keeping the flame lit for cancer prevention.”
Professionally, for this person, Henrietta Lacks’ story represents the need to critically examine our research infrastructure. “Private companies benefit from publicly-funded research without a requirement to give back to ensure the viability of future research.”
“The fact of my life is a miracle,” she told me. Living with multiple chronic illnesses, this patient spoke to me of her journey with alopecia. Of how, in witnessing her body transformed by the condition, she continues to move at once through grief and reclamation.
“I can’t see a future outside of our relationship,” she tells me, “but I also can’t see a future outside of residency.”
“I always believe, no matter what the doctor says, that I will be cured,” she says as her sister sits next to her.
“I wonder if these medical professionals, in caring for people who face such insurmountable odds, walk around all the time carrying this weight I’m hauling now.”
He had been trying to cope with the grief ever since and was on a quest for soul-searching and meaning-making.
She spoke about the ways this traumatic event shaped who she is today: a person with an “unshakeable peace” born of deep faith,
She wanted to help people feel comfortable and transform the shame around colon issues. "I want to talk about things that matter, the things people don't want to discuss.
When we met, she was coming off a stretch of nine 14-hour shifts. She was tired but in good spirits.
